Instead of fully informed 20 years of 2000 2020 The West Wing thank you for the memories shirt, the hospital called my then husband When she was barely a month old, and told him they “had” to put in a feeding tube at 4:30 in the afternoon because the nurse on shift that day could not feed her. When I arrived less than an hour later she had been operated on and her neck cut and a tube in it. I was aghast and furious. We fired her doctor but had no legal recourse. 34 years, uncountable hospitalizations, surgeries, A hideous scar that constantly got infected on her neck and was finally repaired, numerous life threatening medical emergencies, more surgeries.
Struggles finding appropriate education for 20 years of 2000 2020 The West Wing thank you for the memories shirt, we are still fully responsible for all her care and worse, my ex at age 65 spends all his time accounting to the government for every penny of aid she gets as though she and he is a criminal. Her health will deteriorate and she will likely be more dependent not less than others. We will always worry if someone somewhere is abusing or neglecting her after we die. We share guardianship and care duties. The US government stopped her benefits for over a year because of a perceived problem and sued him for over $10,000 and he had to hire two lawyers before they finally admitted they were wrong!